Hello! welcome to my blog. There is a lot of things going on here, I have a passion for many different things: everything from kids and craftting to cooking and music. Although I have these passions, my number one is my family. My husband and my two children. The whole reason for my having on online presence is my daughter Angelinna.
To get started, let me tell you her story.
Being pregnant at 19 was scary enough, but when the doctor got that look on her face half way through the pregnancy; thats when I was really scared. "well," she said, "you are not growing in time with weeks, we are going to schedule a sonogram just to check on the baby." she explained to me that the centemeters of the belly (top to bottom) should match the number of weeks along, I had been right along the graph, until that 22 week appointment. I had to wait 2 days for the sonogram. The time seemed like years, but the results showed that she was heathly and propotionate, she just paused in growing.
Being my first pregnancy, I had no idea what to think. I searched my memories for anything in my first weeks of pregnancy that could have gone wrong: nothing. The second half of my pregnancy continued to grow very slowly. I kept myself busy working two jobs and learning how to crochet. We had 5 more sonograms before delivery, all showing that she was healthy.
Finally, 40 weeks came and we brought sweet Angelinna into the world. She was 5 pounds, 12 1/2 ounces. 19 inches long; a mouse in the nursery with all the new baby boys that came in the hospital that weekend. Everything was healthy! we were good to go at the 24 hour discharge, free to take our tiny bundle home.
I was now 20, with no infant experience. That tiny little baby was the scariest thing I had ever come upon. We soon discovered that she didn't like to be still for even a second. The automatic swing became the best investment ever made. She slept in it for months, because the other option was to walk up and down the hallway all night. So she slept in the swing next to the bed, and in the living room, and in the kitchen, and anywhere that we could haul it along.
A good baby, she was quiet and content most of the time. It didn't take long to discover that she had a connection with music. Any music playing would catch her attention and captivate her. Live music was nothing short of heaven for her.
Her first year was typical of most babies, eat, sleep and be loved by others. It was around her first birthday that we became concerned about her developement. She was not trying to be mobile in any way. She would just sit in one spot until someone came to move her. Playing meant holding as many toys as she could looking at them. With the help of our pediatrian we had her tested through the Lewis-Clark 0-3 early childhood program. within a week we had scheduled therapies weekly at our house. Speech therapy, Occupational therapy and Physcial therapy. We also started going to Kindermusik with babies in her age group.
Then the genetics results came back: Ring chromosome 8
The pediatrian said that she had never heard of it, nor could she find any information and referred us to the Genetics Research Lab in Spokane WA. A two hour trip North ended in heartbreak. They had never seen her condition before, there were no other documented cases with diagnosis. We came home, saddended, but still full of light. Angelinna was most definately and Angel, sent to us from God. We don't know what is in store for her or our family, but we do know that there is a plan for her, we just need to wait and see.
In hopes that I might reach a family out there, searching for answers, I write this blog. Keep checking in, as we learn more information about her abnormality and development, we will share our progress here.
In the mean time, I am home with my beautiful children, working away at the sewing machine to sell at Etsy.com, so I can be home with her as long as possible.